Children's Bronchiectasis Education Advocacy and Research Network (Child-BEAR-Net) is an European Respiratory Society (ERS) Clinical Research Collaboration on improving the outcomes of children and adolescents with bronchiectasis https://www.improvebe.org AusBREATHE is a partner to Child-BEAR-Net.
Child-BEAR-Net’s specific objectives are, to:
- Build a collaborative international network of consumers, clinicians, clinical researchers and biomedical scientists with expertise in paediatric bronchiectasis to lead clinically important research priorities in Europe and beyond,
- Create standardised multi-national bronchiectasis registries relevant in both affluent and low-to-middle income countries,
- Develop a ‘Quality Standards’ document based on the ERS paediatric clinical practice guideline for managing bronchiectasis in children and young people,
- Establish a standardised definition of respiratory exacerbations for clinical research, and
- Establish a consensus of core outcomes/endpoints for evaluating interventions relevant to consumers and considered important by clinicians.
Lead investigator
Professor Anne Chang
Chief investigator
Professor Anne Chang and Professor Keith Grimwood
Project type
Project period